Wednesday, November 25, 2009

Went to the Dr to get test results. Nothing shows up.

Makes no sense, because something is obviously wrong with me. I can't even get out of the bed without help. My entire body hurts. My kidneys are still not functioning. The Dr is talking about dialysis.

Something is wrong.

Thursday, November 12, 2009

Still in the hospital.

So they still think its rheumatoid arthritis but now have reiters syndrome as a strong possibility. 
I had a barium swallow and my esophagus is so swollen nothing can pass. 
The pills just stuck there on the xray but there is no tumor or throat cancer. 
You can see the whites in my eyes again. 
My blood sugar is normally low.. 60-70 but the pat few days its been 200-300's so I'm getting insulin.
They don't think I'm diabetic. They just think my body is so weak and stressed that its affecting my sugar.

The golden question every doctor and nurse has asked me?

Come on. Throw a guess out there.

Why haven't I been getting treatment.
Yes that's right.
Man you should see there face when i tell them I've been to over twenty specialist including ent, Gastro, 5 rheumatologist, nephrologists, dentists and others including a shrink because at one time I thought I was just nuts.
Clearly I'm not.
Oh I might be getting stuck with a g tube if i don't start eating. Fun times. Fun times.

Monday, November 9, 2009

Late September I had an ear infection and cold, I went to the Dr and was given antibiotics.

Oct 4th my leg started hurting, but we went to the fair and I walked around a mile and it was still sore but didn't get any worse, until a week later when I woke up and couldn't walk

it progressively got worse, I went to the Dr and they said to give it a week

Then my ear infection came back a week later. My jaw started hurting. I can't open my mouth still, a month later.

That same week I had food poisoning.

A week later I got a UTI, and went to the Dr 4 days later
It had moved into a a kidney infection. They said I had blood and protein in my urine. They measure protein from 0 - 4 and she said mine was waaay over a 4. 

They gave me antibiotics, and I got the urine test back in the mail with a note fro the Dr. When I had food poisoning, it was E-Coli which can damage your kidneys.

I went back 2 weeks later, and it was not any better. They said I have kidney damage, and want me to see a nephrologist. 
They also sent me to an Orthopedic surgeon. 

The ortho said I have arthritis. But, not both knees hurt, my hips, my ankles, my back and elbow. Plus my jaw from above.

The ortho blamed my weight, and at the time I accepted it, but now I think its bullshit.

Why NOW? Why not at my highest weight 150 lbs ago? 

I'm starting to think this is all somehow connected. I'm thinking about making a list of everything bothering me now, and going to a new Dr and asking what could be wrong with me that DOESN'T include my weight.
That list of right now is:

  • Sores inside my mouth
  • hip pain
  • back pain
  • shoulder pain
  • elbow pain
  • ankle
  • jaw pain
  • clicking in my ears when I move my mouth or swallow
  • headaches
  • protein and blood in my urine
  • eye infection that won't go away
Besides going to a new Dr, any suggestions?

I find it hard to believe I have been healthy my entire life and suddenly I'm falling apart all at once and none of it is related.