I have been crying all day.
I know a lot of you haven't been following healthgate 2009 but here's an update for the rest :)
Since Oct 15th my pain level has been an 8, every day. SOme days a 10. I'm not joking when I say that child birth and gallstones were less painful. The only thing that ever helped was Ibuprofen but I can't take it because of the gastric bypass, and kidney issues. Alas, Ive been taking 800 mgs a day, anyway. Sorry kidneys and tummy, I need to function and get out of bed some days.
The Dr on Wednesday gave me Medrol (a tapered steroid pack) and he's testing my thyroid and wants to look into Rheumatoid Arthritis and Polymyalgia Rhuematica, (PMR) as well as fibromyalgia.
He told me not to take it until he called me friday. Well, on Friday I started having some numbness in my hands so I called him. He said my tests weren't back. He wanted me to take the steroids, anyway. So I took the first 6 yesterday.
I took Jonas to my moms last night, since Ive not really had much of a break with him since this all started, and then I had to go get groceries last night.
I went to walmart and I PLANNED to use one of those motorized carts, but I sucked it up and managed with my crutches and cart because I was too embarrassed to even consider using the motorized cart once I got in the store.
I woke up today, and I feel amazing. My pain level is a 2, and I didn't even need help getting out of bed. I didn't need help getting off the toilet. It didn't take me 10 minutes to go down the stairs. I am so.. relieved.
So this is what I think:
1) It's not fibromyaligia, imo. Steroids don't help this disease and I feel much better, so ... I'm very thankful for this because I know some people who are basically crippled by this and its sometimes not taken seriously.
2.) The things Ive read about PMR say that the pain isn't THAT severe. And it is mainly in the neck and shoulders, and sometimes the legs, but I have it the other way around. I HOPE I have this because it goes away on its own in 2-4 years. But, the symptoms dont match because I'm in severe pain, and my lower half hurts drastically worse than my top half.
3) I don't think its gout. My toes and feet are ok.
4) Lupus was negative which doesn't mean anything, but I dont have a lot o the other symptoms.
So, I think its going to end up being Rheumatoid Arthritis, which sucks but its apparently a lot more treatable now.
That scares me most because it's an autoimmune disease and it can affect joins but other organs like your liven/kidneys/heart/lungs.
So, I don't know what IS wrong with me, but I think I know whats NOT wrong and I think the Dr (and rheumatologist) will agree when I see them.
I, right now, only care that i feel good today. And I'm very sad and wish Jonas was here so I could share it with him. Poor guy has taken the brunt of this illness because I havent been able to play with him or take him to the park/playdates.
Maybe I'll feel good until the Medrol runs out next week.